The ADVC consists on advocating for two missions:

SAPHO Syndrome Recognition

• Get SAPHO Syndrome to get an ICD code
• That SAPHO Syndrome be added to the Social Security Blue Book
• Promote research into the connection between hyperparathyroidism and SAPHO Syndrome
• Include SAPHO Syndrome in the list of diseases of National Institute of Arthritis and Musculoskeletal and Skin Disorders (NIAMS)

Social Medical Services for Puerto Rico

• Develop connections with medical powers to provide quality medical services to Puerto Rican patients.
• Advocate for preventive diagnosis through genetic testing
• Guide and offer financial assistance to patients in need of payment of health insurance premiums, copayments, coinsurance, supplies, utilities, and transportation.
 • Advocate for better services from social programs such as Social Security.
• Connect patients with US and international experts for treatment.
• Support extensive drug research for treatments that have been denied by the FDA.
• Build and provide a holistic space that allows working on emotional & mental health while waiting for approval and/or treatment.
• Speed up the creation of the International Classification of Diseases (ICD) for rare conditions and include them in the Social Security Blue Book.